Self acceptance 

I’ve been thinking a lot the last few days about acceptance. How’s it’s something we give yet also something we crave.

I’ve know since i first became aware of my feelings that I have desperately needed to feel accepted. 

That I will bend myself backwards, inside and out just feel part of a group. Only then to find myself not truly being me and still feeling lonely in a crowd.

I look for others approval in all I do.

My self worth is handed over to others only measured by what they feedback to me.

I find myself looking in the mirror feeling rather gorgeous only to start self hating if my husband or friends don’t compliment me.

It’s not about my ego it’s my lack of self belief, self worth.

The other day I was on a high due to the publishing of my post over on Huff post. But slowly it ebbed away as the one person I wanted to be proud of me said nothing.

It’s a rollercoaster of expectation drowning in acceptance.

Yet what I have started to realise is that acceptance starts with me. That I hold the power of self acceptance and that it’s not fair to give it away.

It’s not fair to expect others to realise what I need. It’s not fair to myself to allow others opinions of me form my identity. 

Easy said than done though isn’t it.

With a society telling us what size to be, what food to eat, what roles we should play, it isn’t easy to find your soft small voice in the rapturous noise.

But it’s something I really need to aim for. 

Self acceptance.

I want to hear my heart tell me well done, congratulations and you go girl. 

I want to hear this first.

I want to learn how to accept compliments when given or learning to not give a shit when they aren’t.

Self value 

Self worth 

Self acceptance 

Maybe it’s something to do with getting older, about realising that you cannot please all people at the same time. 

I’m not sure but what I do know is that I am proud of myself at times. I’ve worked hard for all that I have achieved and will continue to do so in the future.


Hope In Action

Yay its October the month of darker nights and Halloween but for me it’s also the start of my #nomoreemptyarms campaign.

It’s the time when I drive you all insane with information about Rett Syndrome and the great need for research and fundraising for a cure to be found.

The time when I ask you to join with me and share your photos on all your social media sites.

I want all your friends, colleagues asking you about the hashtag. I want everyone everywhere learning about Rett Syndrome.

I want #nomoreemptyarms to be in every timeline, Instagram, Facebook, Twitter, Tumblr and all those I have yet to learn to about.


Because awareness is so needed.

So many times when I speak about Livvy and share what I lost her to people ask me “what is Rett Syndrome”.

Its still so relatively unknown.

I want people to know that Rett Syndrome is a rare neurological disorder that affects mainly girls but also boys.

That every 90 minutes a girl is born with Rett Syndrome.

That children lose their lives to the complications of Rett Syndrome.

Why am I asking you to share just a photo?


Follow me over to the to read why ………



Less of the mature please…

I started university this week, I am now officially a student (go me). There I was at thirty-nine years old stressing about what to wear for my first day at school. I had no idea what to expect, the last time I was in an academic setting it was my daughters parents evening. The last time I had been expected to learn was errmm twenty something years ago.

What do I take, what will I need?  My daughters advice of a pen and pencil in my blazer pocket didn’t help, not only because I wasn’t actually going to wear a blazer.

Honestly I was a mess, nerves on overdrive. What were my tutors going to be like, would I get on with the other students?

As I first pulled onto the car park at the university I was in awe, the place was incredible . Already I was waging a bet with myself about the number of times I would get lost.


Go read the rest of this post over here…..



So as we head towards October I find myself bracing myself for the impact of my social media campaign #nomoreemptyarms. As I prepare to fill social media with photos of parents, grandparents, aunts, uncles and friends hugging their children close, I am also preparing myself for my truth, my arms are empty.

Nearly seven years ago my beautiful daughter Olivia lost her battle to the devastating neurological condition Rett Syndrome. In the early hours of November 7, 2008, our world was torn apart. Nothing could have prepared us for the impact and pain we have had to face as a family.






Read the rest of this post over here